Move it! Move it! Move it!

 Yipee!

I've finally got an appointment with a Movement Disorder Neurologist! It's 2 months away but hey, it is an appointment.  Finding one, then getting an appointment has been hard. All over the Parkinson Foundation and in the Michael J. Fox Foundation websites, in the information for newly diagnosed people, they have talked about, if possible, to see a Movement Disorder Neurologist.

Fine, but how to get a recommendation for one? There does not seem to be a lot of them, and not everyone knows they exist. I didn't. 

One, you can call the Parkinson Foundation Help Line. They have lists of them for different areas. I got a name, she sounds great, but she is an hour away. I'd like someone local. So, I tried asking my Dr. and the local Council on Aging. I even asked the members of the Dancing with Parkinson's class I went to for the first time a week ago. Yep, we have one in Yellow Springs, Ohio, my little village. Thank you Jill, we are truly blessed.

I have an appointment with the Dr. who is an hour away. Oh well. I was able to get an appointment for November compared to one who I wouldn't have gotten an appointment with until March of next year!

So, I SCORED! But it is still long enough away that I decided to start taking the Sinemet. I had been hoping to get a Movement Disorder Neurologist to take over making a plan for me.  I had heard about Mao-B inhibitors from Linda on the Parkinson's Foundation Helpline the first time I called.  She said that some people took them first.  Since then I have read about them and decided that they were not the way I should go. But these kind of choices, I would rather make with a professional at my side. I wanted the appointment with the movement disorder specialist, I wanted it bad.

LINKS

Dancing with Parkinson's

What does a Movement Disorder Specialist Do?

Footnotes from Corrine

Snarky should come and hike on an Arizona trail with me. One rattle and Snarky would be moving his arse faster than a bullet train ;) Unfortunately you're attached to snarky and I wouldn't want to subject you to that.  Dam you Snarky!

On a more serious note how cool to have a Dancing with Parkinson's in Yellow Springs and with the wonderful Jill Becker. 

Did you know there was a nice article about her class in the Yellow Springs News in 2014 titled, "Calling on Dance to Fight Parkinson's". Wish I could join ya kiddo. Maybe next visit.