Parkinson's: The Tremulous Tongue

That's Weird!

I ran out to show Steven. My tongue was trembling! Or at least I thought it was. So I asked him do you see it? Yes, he did. It was definitely weird. (You may possibly be thinking it is a bit weird how I got to notice that my tongue was trembling.) I was making faces in the bathroom mirror. Do you make faces at yourself in the mirror? I think I have always entertained myself that way.

I called it my first Tremor sighting. I could stop it by flexing it and didn't feel it tremble when in my mouth. Actually I have had short spurts of trembling in a finger every once in a while. But this was definitely weird and since it didn't hurt, and I could stop it, it was kind of cool in a weird way.

So this is going to be a Parkinson's check in blog.

I'm doing OK. Not (I hope) to the point of being F.I.N.E. That is what the magnificently strange poet in Louise Penny's Gamache series answers to the question “How are you?”

"I'm F.I.N.E.” 

It stands for Fucked Up, Insecure, Neurotic and Egotistical. 

I also love Sylvia Boorstein's stand that when we say we are OK, it is not that we are not facing serious life problems, but just that we are managing gracefully.

There are days when I worry, but then so does everyone. 

I am still struggling with not sleeping past 2-3 am many nights. I get up to go to the bathroom and that's it. My neurologist, told me that 4 potty breaks, a night is excessive and might be part of the problem. She suggested seeing a pelvic floor physical therapist. Amazingly at the same time, I got 2 wonderful recommendations from friends, for the same pelvic floor PT. And she is near where I live. Which is grand. But I probably will not be reporting in about the details of the sessions, They are a little weird.

Which brings us full circle,

Cheers to all the weirdness in life,

Nancy & the Snark