A Journey into
Parkinson's with Nancy Mellon
Coordinated by the
Great Brit Corrine Bayraktaroglu
Note to self- if up at night, don't read a Parkinson's
pamphlet. The first thing they tell you
in all of them, is what Parkinson's is and that Parkinson's is a Degenerative
Disease. I looked it up, (though I know
what it means) but to be specific, the dictionary says- “Degenerative” -getting
steadily worse.
So while I was trying to nap today, I thought about am I
getting steadily worse?
Yep, I think I am.
But am I? You can be on hold, thanks to “vigorous” exercise.
I'm not sure if I ever make it up to vigorous. I certainly get tired out before
I “break a sweat.” Breaking a sweat is
the term brought up in all the exercise articles. I don't even glow.
My sleep is for the pits, is it possible for it to get
better? (I sure hope it is not possible
for it to get worse!) I am trying different things, most of which, I have
discussed in past posts. Last night I
counted from 300 in 3's backwards at least 5 times and twice counted by 3's
forward. I have learned that there is a
pattern and it has gotten easy to do it but has it helped me fall asleep? No.
I regularly get up and have a glass of warm milk and a piece
of toast. Which I enjoy, it is soothing and I read something boring like a
Parkinson's pamphlet, (no don't do that!) but does it help? No.
Though I would still suggest you doing it because it is a
pleasant way to spend some hours in the middle of the night.
The Restful Legs Homeopathic remedy that I am trying seemed
to help for a couple of nights, but... then it didn't.
I have used the self-talk app. I like it but am not sure what
it is doing for me yet. My brain is not reprogrammed
to sleep, instead it yammers on and on.
Good word “Yammer. I wonder if that is a real word. Back to the
dictionary.” OK the dictionary sent me
to idioms- “to talk volubly about something especially in an annoying,
complaining or peevish manner.” Oo boy,
that doesn't sound good.
My brain seems to be
having more trouble remembering words. I
am doing a lot of “can you please get down that thingy for me Bren.” “You know.. the brown thingy,... up
there” as I point vaguely in the
direction of the shelves in the kitchen.
Brendon of course seeing the chance to pull my pony tail says “what
thingy mom?” He was the one who had put it up for me on the shelf the day
before and knows what I am trying to say. He smiles and says “I know, I'm just
being a stinker.”
To not yammer on, I will end this by saying at the moment,
the snark is being a brat.
Wallow
Cheers,
Nancy and the SNARK
Footnotes from Corrine
Oh, for a good nights sleep!
I can't believe how many thingy's are out there. I am always looking for the blasted thingy's. As for a solid night's sleep, arg it's at times elusive. I empathize my friend. Snarky seems to love playing havoc with you. I am giving him the stinky eye for sure.
So sorry the Restful Legs isn't working. Sometimes I think we should form an online club for insomniacs, so that when you are awake in the wee hours, you could check in with fellow sufferers. Those are the hours when you think you are the only person in the world awake. All are welcome, except Snarky.
ReplyDeleteI agree that "degenerative" is one of the hardest parts of this journey. What I find helps sometimes is : staying in the present and having gratitude for what I do have. Thank you for sharing your journey. Neil
ReplyDelete