How I deal with Parkinson’s by Neil A. Silvert
I am a little selfish in that I want to have most of my time to myself. I appreciate every minute of each twenty four hours, and I want to do what I enjoy. What I enjoy most are activities that are mentally and emotionally stimulating. I learned to exercise vigorously at an early age, and I continue doing that every day if I can. I used to be a long distance runner, and I learned that exerting myself for extended periods of time made me feel good. As I grew more self aware, I started to recognize that I was self medicating by running. I was taming my anxiety. When I stopped running hard on a regular basis due to leg injuries, I started drinking to tame my worries. Did that for several years till I woke up at thirty.
I realized that my feelings and thoughts didn’t equate to my value as a human being. How does that relate to how I face my Parkinson’s disease? Well, it does, because as I grow older I understand that compassion for everyone and every living thing is my goal. If I always pursue that intention, I am happier. When I am happier, I feel better emotionally and physically. Being able to be kind to others is a lot easier when I treat myself well. I’m doing that pretty well I believe. I hike up a hill in the woods with my dog every morning.
Breathing heavily when I get to the top, I shadow box, do high stepping and slow motion kicking before a stretching routine. I look at the trees and breathe in nature. I ride my bike and use resistance bands for strength. I’m married to a loving woman, and my dog is my best buddy. I joyfully train dogs on a part-time basis, do some writing of essays. I eat healthily and am lucky enough that I can stay in bed in the morning to get enough sleep. With my illness, which I was diagnosed with in 2020, sleep is crucial. Of course, I take medication as advised by my neurologist and I participate in my Dancing with Parkinson’s group every Wednesday, but otherwise I’m not committing to any other therapeutic programs as of yet. Practicing on my own what I have learned helps my Parkinson’s. Every day in the car with the windows closed tight, I sing and make noises to exercise my swallowing muscles while making exaggerated facial expressions so I avoid having a bland affect. I meditate daily to work on acceptance. I have a degenerative disease, but I believe my routine is keeping this neurological imposter at arms length. One last thing I do that’s crucial- I gravitate to peaceful, loving energy. My friends in the Wednesday group help motivate me to keep working hard. Working hard to be a happy, healthy and fruitful human being. My dog training and my writing are vehicles I try to use to help others. That’s my recipe to deal with my Parkinson’s. I’m not opposed to eventually getting more involved with scheduled therapies. For now this is enough.
hi Neil, you have left me with a great image in my head of you doing facial grimaces and smiles in the car. Thank you for the wonderful post.
ReplyDeleteBeautiful. Like Nancy, I enjoyed imagining myself singing and making exaggerated facial expressions. I don't have Parkinson's, but those are things I love to do and don't do enough of! Thanks for the reminder to do what feels good, and to make every moment here a gift.
ReplyDeleteI totally resonated with your statement, "I understand that compassion for everyone and every living thing is my goal." Nancy got me a copy of the TIBETAN BOOK OF THE DEA a while back for my birthday (was there a message in that gift?). Because it is easy for a westerner to lose the message in the complex, unfamiliar imagery, Sam Eckenrode suggested I read THE TIBETAN BOOK OF LIVING AND DYING. The message of compassion infuses the BOOK OF LIVING AND DYING. I still suck at compassion and battle with internal anger on a regular, if not continual, basis. But, like you, compassion is a goal. It DOES make one feel better. Thanks for the affirmative goal. Great post!
ReplyDeleteHi Neil
ReplyDeleteJust your countenance says love.